CRPS UK grew from the “CRPS at the Min” support group at the Royal National Hospital for Rheumatic Diseases in Bath (The RNHRD, colloquially known as the Mineral Water Hospital, or The Min). Seeking to unite people with this uncommon condition, its founders created a discussion forum. In 2011 the group decided to extend its reach beyond patients at the RNHRD and CRPS UK was formed.
CRPS UK has an active Facebook support group called CRPS UK – Living with Pain talking about anything and everything to do with CRPS. Amongst other things we celebrate, commiserate and problem solve together. It can be found here: www.facebook.com/groups/CRPSUKlivingwithpain. This a closed group, but we endeavour to start a Facebook page for all in the near future. Alternatively please email firstname.lastname@example.org to be signed up for our newsletter.
CRPS UK is focused on helping people with CRPS to live the best lives they can. We aim to do this by providing a supportive environment in which people can mourn their old lives whilst discovering their new ones.
Specialist treatment can be the key to lessening the impact of CRPS and helping people with CRPS to live rich and fulfilling lives. We are working with specialist treatment centres to provide a grant scheme for patients with CRPS who are experiencing financial difficulty, to help them to afford travel expenses to and from hospital. This will ensure that they can access the treatment they need. Currently this is only for travel costs for those receiving treatment at the RNHRD/RUH in Bath.
Going forward we also aim to improve research, diagnosis and treatment of CRPS. We will be promoting awareness and education about CRPS in primary health care, which should lead to more patients receiving timely diagnosis and intervention.