My name is Amanda Nelson. I developed CRPS almost 5 years ago, in 2010, after suffering numerous soft tissue injuries caused by a rare congenital foot deformity, Navicular Calcaneal Coalition (bilateral), which was diagnosed at the age of forty. As a result of the condition I had a triple fusion, but had presented with CRPS symptoms long before the surgery. I was diagnosed with CRPS 18 months after receiving the Coalition diagnosis and a year post-surgery.
Pre-CRPS, I was very active, taking part in many sports, and travelled extensively, living and working overseas. Developing CRPS changed my life irrevocably and I took it very badly. I turned my life around when I rediscovered cycling through a charity called Charlotte’s Tandems, which in turn set me on a journey to raise awareness of CRPS, and Cycling for Complex Regional Pain Syndrome was born.
Lands End to John O’Groats 9th – 29th September 2013
A journey of 1140 miles and 20 days of cycling.
Minety – Snowdonia & Zipwire 28th October – 1st November 2014
A bike ride totalling 200 miles over 4 days, followed by a ride on Europe’s longest zipwire, to coincide with ‘Color the World Orange’, an initiative started in the US in 2013 to unite sufferers worldwide and raise awareness of CRPS.
12 Hour Static Cycle Ride 2nd November 2015
I will be doing my third annual cycle challenge. This year I will be attempting a 12 hour static ride to raise money for CRPS UK.
When: Monday 2nd November 2015
Where: Sports Training Village – Bath.
Time: From 8am – 8pm.
Further details to follow.
If you are interested in joining me for a leg of the ride, please contact me at Amanda.Nelson@CRPS-UK.org for details on how you can take part.