Websites – General information:
CRPS Network UK
The CRPS UK Clinical Research Network is made up of clinicians and researchers interested in CRPS. In 2008 they created the CRPS UK registry database to facilitate epidemiology studies, academic and pharmaceutical clinical trials.
Whilst not directly related to Arthritis, Versus Arthrtis have an excellent information sheet about CRPS https://www.versusarthritis.org/about-arthritis/conditions/complex-regional-pain-syndrome-crps/
Pain Relief Foundation
The Pain Relief Foundation is a UK charity which funds research into the causes, treatment and relief of human chronic pain and education for doctors and nurses in pain management.
Reflex Sympathetic Dystrophy Syndrome Association
This is an American charity supporting people with CRPS and research into the condition. They have a good range of articles about the experiences of people with CRPS along with details for research and treatment protocols.
CRPS Mums – Facebook Forum
CRPS Mums was originally set up by a lady named Trina, with approx 6 Mums. They now have just under 300 members around the world. Trina left the group to study, and it was taken over by another CRPS mum, Louise Duffy, and one other admin. It is a haven for Mums who find the symptoms of CRPS go against all their natural instincts. The group has been built on knowledge, experience, positivity and is a respectful and safe place to seek support. All new members are monitored. All original Mums are still in the group even though most of their children are now pain free. They still support new Mums at the start of their CRPS journeys. CRPS Mums is a little rainbow in a Mother’s difficult journey of rainstorms while dealing with CRPS. If you would like to join the group please click https://www.facebook.com/groups/crpsmums/
The titles in our range of literature are listed below, you can download a copy by clicking on the title or you can order a physical version for just the cost of postage in our online shop
Facts about CRPS A5 Handout – downloadable
Healthcare Leaflet – Recognising a Patient with Complex Regional Pain Syndrome – downloadable
Friends family CRPS info leaflet – downloadable
Healthcare professionals CRPS info leaflet – downloadable
Employer CRPS info leaflet – downloadable
Complex Regional Pain Syndrome Booklet – order in shop
I have CRPS Bookmark – order in shop