Julie Weymouth – Co-Founder.
Hi my name is Julie. I live in Bradford on Avon not far from Bath. I developed CRPS in my foot after a fracture to my knee when I fell onto a concrete floor in 2009.
I have been fortunate to attend two inpatient programmes at The RNHRD in Bath locally known as The Min. I soon realised that I wanted to help other sufferers. Since 2011 I have been a CRPS “Expert Patient Volunteer” at The Min. I visit patients on the wards and I enjoy this as I love to talk!
Amanda Nelson – Co-Founder, Chair, Fundraiser-in-Chief.
Hi, my name is Amanda. I developed CRPS almost 5 years ago, in 2010, after suffering numerous soft tissue injuries caused by a rare congenital foot deformity, Navicular Calcaneal Coalition (bilateral), which was diagnosed at the age of forty. As a result of the coalition, I had a triple fusion but had presented with CRPS symptoms long before the surgery. I was diagnosed with CRPS 18 months after receiving the coalition diagnosis and a year post surgery.
Pre CRPS, I was very active, taking part in many sports, I travelled extensively, and lived and worked overseas. Developing CRPS changed my life irrevocably and I took it very badly. I turned my life around when I rediscovered cycling through a charity called Charlotte’s Tandems, which in turn set me on a journey to raise awareness of CRPS and Cycling for Complex Regional Pain Syndrome was born.
Fiona Armitage – Co-Founder, Secretary.
Hi, my name is Fiona and I live in Skerries Ireland. I got CRPS after an operation in 2007; the diagnosis wasn’t confirmed until I traveled to the Mineral Water Hospital in 2010.
Prior to this I lived in South Africa for 20 years and have four grown up children.
Rebecca Boot – Co-Founder, Treasurer.
Hiya, I’m Rebecca and I live in the midlands. I got CRPS in 2006 when I was 12. Since then I’ve had various treatments including an inpatient pain management programme at the min. I have navigated the education system with CRPS and have become a bit of a creative problem solver because of it! I’m into politics and in 2014/15 I was Disabled Student’s Officer at my University.
Dr Jacqueline Bailey – CPsychol, AFBPsS.
I am interested in CRPS as a result of working at the RNHRD on a couple of research projects (see my blog) and I first became interested in pain while working at the Haemophilia Society in 2004.
My qualifications are an MSc and a PhD; I am a health psychologist chartered with the British Psychological Society (of which I am also an Associate Fellow) and registered with the HCPC.
Danielle Brown – Patron.
As a child Danielle had a passion for the outdoors until she developed CRPS aged 11. Archery was a lifeline when everything seemed so bleak and she forged an amazing, but completely different path.
Danielle won gold in both the Beijing and London Paralympics and became a three time World Champion. Taking gold at the 2010 Commonwealth Games in Delhi, she became the first disabled athlete to represent England in an able-bodied discipline and she holds all 12 Paralympic world records. Danielle achieved heights that others didn’t even realise were possible until she did it, proving that disability is no bar to achieving.