About CRPS UK
CRPS UK is a patient led organisation for people with Complex Regional Pain Syndrome, their family and friends and anyone working within the healthcare system. We offer support, education, assist with research and raise awareness of CRPS.
We became a registered charity in February 2016, we have been working hard ever since and have achieved a great deal in this short time.
CRPS UK grew from a small group at the Royal National Hospital for Rheumatic Diseases in Bath. In 2011 the group decided to extend its reach beyond patients at the RNHRD and CRPS UK was formed, functioning as a small not for profit organisation, raising funds to enable us to hold small conferences, meetups and a Facebook support group. We applied for charitable status in 2015 so that we could widen our activities into education, raising awareness, research and other projects.
CRPS UK is run mainly by volunteers many of whom have CRPS. Aside from the core team, we are fortunate to have a wider group of volunteers, some of which have CRPS, some who have a loved one with the condition and others who have an interest in supporting people with it. They assist us at events held throughout the year and kindly offer time and support where needed.
CRPS UK is primarily focused on helping people with CRPS. One way we aim to do this, is by providing a supportive environment in which people can find out about CRPS and get in touch with a community of people who know what they are going through. You can get to know others with CRPS here.